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Gibstar Makangila

Communities are not waiting for their capacity to be built—they are the ones with capacity

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Gibstar Makangila

Executive Director, Circle of Hope

Zambia

Through approaches that support the leadership role of communities, Zambia has been able to make remarkable gains towards the 95–95–95 targets on the road to epidemic control.

The success of these approaches highlights three lessons. The first is that ensuring access to vital prevention, testing, treatment and care services is driven not only by the clinical context but also by the community context. The second is that because people in a community understand and connect with their peers in deep ways, communities have many capacities and forms of social capital that others lack—they are experts. The third is that the most effective programmes do not only involve communities in outreach and delivery—they are led by them in shaping the cycle of design, monitoring, learning and improvement.

“If anyone wants to witness the power of communities to drive progress towards ending AIDS, I recommend they visit my country, Zambia.”

“If you want them to listen, that is where they are ready to hear, and where you will find the people they are ready to hear from.”

-Gibstar

In 2018, Circle of Hope rolled out a new HIV service model in Lusaka—the community post. The community post model, which community members designed and developed, decentralized HIV service delivery to bring it to where people were. This meant doing two things. The first thing was to close physical distance: the community post model was designed so that no person in need of HIV services would be required to travel for services more than 10 minutes from where they live. The second thing was to close social distance: the community posts were set up across the places where people already congregated—where they went to sell or buy goods in the market, where they went to socialize, and where they went to practise their faith.

For many communities affected by HIV in our region, faith is an important aspect of the texture of community life. Places of worship are where communities gather every week; where cultural, social and self-help organizations are built; where vital aspects of community life are celebrated; and where bonds of trust are developed. If you want to talk with people, that is where you can find them.


The community post model has been so successful that it is now being expanded in other countries.

This community-led approach has brought huge gains. The posts in hospitals were not delivering the results needed to tackle HIV, but the posts in the community are delivering those results. Today, we have 150 community posts in eight of the 10 provinces of Zambia, with each post including a physician, a data analyst and a psychosocial counsellor, all of them recruited from the communities they serve. Within 18 months of the rollout of the community post model in Lusaka, which started in 2018, we saw a 12-fold increase in the number of people diagnosed with HIV.

We have found that our community-led approach has helped overcome the stigma that often deters people from learning their HIV status or seeking the services they need. In this regard, we have seen especially good results among men living with HIV. While men across sub-Saharan Africa are less likely to know their HIV status or to obtain antiretroviral therapy compared to women, we have seen when the community post model is rolled out that the gap in HIV treatment cascade results is reduced.

The success of the community post model is not only because it involves communities but because its design is led by communities.

We were reminded of that lesson again recently working to developed tailored services for adolescent girls and boys. Youth-friendly spaces within the service delivery sites were not bringing in young people in the numbers expected. It was young people who understood why these were not working and what needed to change. It was being inside a site with adults that for many young people made them fearful to attend. A youth corner or a youth room was not enough to overcome this fear. Separate youth posts needed to be established. Adults, —even the most sympathetic and experienced—had not understood this need.

Community leadership is already driving remarkable results. If supported more fully, it can lead the world towards ending AIDS as a public health threat. It is vital that the leadership role of communities is properly resourced and remunerated. Too often, work is resourced in ways that fail to recognize the contributions of communities or provide economic security for their work. Only communities are ever expected to work for little or no pay. This can leave the people on whom the HIV response depends unsure of how they will take care of themselves and their families. This is not the way to support people to achieve their greatest potential. Communities in Africa have a saying—“If you want to keep on getting milk from the cow, you have to feed the cow.” Fully supporting community leadership also means recognizing that communities are not there to implement predesigned projects. The transformative power of community leadership cannot be achieved through involving people in service delivery, or through merely consulting on the details after the plan is designed. Communities need to shape the plans.

“Communities are not waiting for their capacities to be built by others—they have capacities that others do not have.”

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